Well, we spoke with the Neonatologist and he let us know that Ben has a couple of holes in his heart which they say are fairly normal and will probably close up. The problem to be more concerned about is he has an area of his aorta that is narrower than the rest. They said it isn't life threatening right now and he is getting the blood flow he needs, but they want to keep an eye on it and look into it further. So he is going to need to see two specialists down at Primary Children's Hospital now instead of one. Previously he was going to be seeing a Geneticist, and now he will also be seeing a Cardiologist.
But the doctor also confirmed that Ben can come home when his bilirubin levels (jaundice) come down & when he can eat on his own. His levels are lowering and he is eating more, but he isn't there yet. We'll try to post more pictures tonight.
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4 comments:
Thanks for the update...will pray for Ben and all.
ben is so cute! i am so sorry to hear about his health problems. i will pray for him and you. i hope he can go home with you soon. thanks for keeping us updated. let me know if we can do anything for you...especially cuz we live so close to primary childrens - you can come and rest and eat at our house any time. june and ben are going to be good pals!
K you don't know me but i am one of ashley robert's friends. And i just had to tell you that my daughter had the same things that your little precious son has. she had two holes and the aorta was also thinner. She also has WOLF PARKINSON WHITE (W.P.W) that is an extra airway to her heart. Most babies holes do close megans didn't and at 11 months she had to have open heart surgery but you should see her today she is a happy very healthy amost 5 yr. old so if you have any questions feel free to ask away. Good luck. Little ben is in our prayers.
I'm glad he is doing better. We will continue to pray for him. I'm excited for him to come home so we can visit! :) (when you're up to it)
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